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PSC Support

Supporting PSC patients with an intuitive mobile app

PSC Support, the UK’s premier charity dedicated to improving the lives of those affected by primary sclerosing cholangitis (PSC), has taken a significant leap forward in digital healthcare. Recognizing the challenges faced by individuals living with this chronic liver condition, PSC Support embarked on a journey with Red C to develop a comprehensive mobile app. This innovative tool is designed to provide PSC patients with crucial support and monitoring capabilities, while also facilitating vital data collection for ongoing research efforts.

The challenge

Living with PSC can be daunting, with patients experiencing a range of symptoms that can affect their daily lives and require careful monitoring. PSC Support identified the need for a digital solution that would allow patients to easily track their symptoms, manage their health information, and communicate more effectively with healthcare providers. Additionally, the charity sought to harness patient-reported data to enhance research and understanding of the disease.

The solution

Red C and PSC Support collaborated to create a user-friendly mobile app tailored to the needs of the PSC community. Key features of the app include:

  • Symptom Tracking: An intuitive health tracker enables patients to record symptoms and feelings, such as fatigue and discomfort, with the innovative use of a “body” image for precise symptom location recording.
  • Comprehensive User Profiles: Patients can store vital health information, including current medications, emergency contacts, and latest test results, ensuring important data is readily accessible.
  • Enhanced Communication: The app allows patients to generate reports of their symptoms and health data, facilitating more informative and productive consultations with their healthcare providers.
  • Research Support: Through surveys and data collection features, the app contributes to PSC Support’s research initiatives, providing valuable insights into the condition’s impact and treatment efficacy.

Process and Features

  • Collaborative Development: Red C engaged in a close partnership with PSC Support, carefully mapping out user journeys to ensure the app addressed the specific challenges faced by PSC patients.
  • Data Collection and Reporting: The app includes a variety of tools for patients to log health-related information, from symptoms to medication adherence, alongside functionalities for generating visual reports.
  • Engagement and Support: Beyond health monitoring, the app serves as a comprehensive resource for patients, offering access to guidelines, clinical trials, news, and support networks within the PSC community.

The result

The launch of the PSC Support app has marked a significant advancement in the management of primary sclerosing cholangitis, offering:

  • Empowered Patients: By providing tools for symptom tracking and health management, the app empowers PSC patients to take an active role in their care.
  • Improved Healthcare Interaction: The ability to generate detailed health reports enhances the communication between patients and healthcare providers, leading to more personalized and effective treatment plans.
  • Valuable Research Contributions: The app’s data collection features are instrumental in gathering patient-reported outcomes, enriching PSC research and paving the way for breakthroughs in understanding and treating the condition.

Through this pioneering app, PSC Support and Red C have demonstrated the transformative potential of digital health solutions, not only in improving patient care but also in advancing medical research and community support for those living with chronic conditions.